Hockey video specialist and policeman at the Sûreté du Québec Affected by Inclusion Body Myositis
A hockey video specialist and a policeman at the Sûreté du Québec, Martin Jarry is also the father of two children. In April 2016, his life changed when he was diagnosed with Inclusion Body Myositis, a degenerative disease of the muscles that very rarely affects people under the age of 50.
Martin Jarry is a go-getter. No problem ever stops him. With his disciplined and confident nature, he does everything necessary to achieve his goals, exploring all possible routes. Despite the complications of his illness, he was able to overcome the obstacles and become a pioneer and a reference for people with Inclusion Body Myositis. He never stops expanding the limits that are normally recommended for people with this disease.
The word Myositis literally means inflammation of the muscle; it describes the inflammation or swelling of muscle tissue that can lead to rapid and significant muscle loss. It is a rare, severe and degenerative disease, the causes of which are still largely unknown and for which there is, so far, no known treatment. Generally, after 5 to 10 years, the affected people become wheelchair bound; after 12 to 15 years, death occurs.
Martin’s health problems started when he realized that he was having more and more difficulty doing simple tasks of daily life, such as showering or climbing stairs. His daily activities had become a real challenge for him. In the spring of 2016, after months of analysis, he was diagnosed with Inclusion Body Myositis at the age of 46 years.
As an accomplished sports person practicing several activities before his diagnosis, Martin did not let the disease stop him. Although it is usually not recommended to train too much when one is affected by Myositis in order to prevent the muscles from breaking, Martin trained under the supervision of a specialized kinesiologist. Since then, he has trained regularly. If the disease caused him to lose a lot of muscle mass, his general health improved. In fact, he has never been so fit!
In the winter of 2017, Martin came to meet with the B-TEMIA team to share his plan to run a 10Km in Ottawa for Myositis Canada, an achievement impossible for a person with Inclusion Body Myositis, even with a good training program. Martin hoped that Keeogo could help him cross the finish line. A trial with the device immediately convinced him! Martin then trained with the Keeogo for two months and, on May 27, 2017 he ran the 10Km with his team in less than 1 hour and 20 minutes.
Ever since he had a Keeogo device, Martin has used it on a regular basis in his sports activities. He is still a hockey coach and he is also very interested in football. As a spokesperson, he plans to raise awareness about Keoogo™ and its applications for people who would need it in the sports community.
Martin refuses to give up. His ultimate goal is to make Myositis as widely known as possible and generate the most interest in engaging Canadians in a major American study of this disease. On the other hand, as he says, it is not strength that drives him, but fear. “Many people tell me that they admire me, but it is fear that motivates you at that time. You say to yourself that you must do as much as possible before you are no longer able to. That’s what drives you.”
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